Lighthouse
Fairness, Equality, Bacon
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Hey everyone. February 29th is Rare Disease Day, set on the rarest of days. It was started to spread awareness of diseases most people don't know about so they can have better treatments and support. I thought maybe I could use this thread so posters could post information or talk about a rare disease that has affected either them or a family member, so they could spread awareness.
My disease is called Wegener's Granulomatosis, a rare form of vasculitis that effects the lungs, throat, sinuses, and kidneys. I've had it since I was 16, and it resulted in chronic kidney failure. I'm now 30, have had a working kidney transplant since 17, and have been in remission since then as well. Here is a good summary of it.
Cleveland Clinic: Wegeners Granulomatosis
My disease is called Wegener's Granulomatosis, a rare form of vasculitis that effects the lungs, throat, sinuses, and kidneys. I've had it since I was 16, and it resulted in chronic kidney failure. I'm now 30, have had a working kidney transplant since 17, and have been in remission since then as well. Here is a good summary of it.
Cleveland Clinic: Wegeners Granulomatosis
