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http://www.healthzone.ca/health/newsfeatures/article/729852--man-thought-in-coma-for-23-years-was-conscious?bn=1
Man thought in coma for 23 years was conscious
Raf Casert
ASSOCIATED PRESS
BRUSSELSFor 23 torturous years, Rom Houben says he lay trapped in his paralyzed body, aware of what was going on around him but unable to tell anyone or even cry out.
The car-crash victim had been diagnosed as being in a vegetative state but appears to have been conscious the whole time. An expert using a specialized type of brain scan that was not available in the 1980s finally realized it, and unlocked Houben's mind again. The 46-year-old Belgian is now communicating with a special touchscreen on his wheelchair.
"Powerlessness. Utter powerlessness. At first I was angry, then I learned to live with it," he said, punching the message into the screen during an interview with the Belgian RTBF network, aired Monday. He has called his rescue his "renaissance."
Over the years, Houben's family refused to accept the word of his doctors, firmly believing their son knew what was happening around him, and gave no thought to letting him die, said his mother, Fina. She was vindicated when the breakthrough came.
"At that moment, you think, `Oh, my God. See, now you know.' I was always convinced," she said in a telephone interview with AP.
The discovery took place three years ago but only recently came to light, after publication of a study on the misdiagnosis of people with consciousness disorders.
While a 23-year error is highly unusual, the wrong diagnosis of patients with consciousness disorders is far too common, according to the study, led by Steven Laureys of Belgium's Coma Science Group.
The issue is fraught with ethical questions. Patients diagnosed as being in a vegetative state with no hope of recovery are sometimes allowed to die, as was done in 2005 with Terri Schiavo, the severely brain-damaged Florida woman at the centre of the biggest right-to-die case in U.S. history. Her feeding tube was removed.
Houben was injured in a car accident in 1983 when he was 20. Doctors said he fell into a coma at first, then went into a vegetative state.
A coma is a state of unconsciousness in which the eyes are closed and the patient cannot be roused. A vegetative state is a condition in which the eyes are open and can move, and the patient has periods of sleep and periods of wakefulness, but remains unconscious and cannot reason or respond.
During Houben's two lost decades, his eyesight was poor, but the experts say he could hear doctors, nurses and visitors to his bedside, and feel the touch of a relative.
Over the years, Houben's skeptical mother took him to the United States five times for tests before linking up with Laureys.
"We saw his brain was almost normal," said neuropsychologist Audrey Vanhaudenhuyse.
A breakthrough came when Houben was able to indicate yes or no by slightly moving his foot to push a computer device placed there by Laureys' team. He can now spell words using the touchscreen.